UW Privacy Office

November 21, 2019

European data law is impeding studies on diabetes and Alzheimer’s, researchers warn

Source: Science, November 20,2019

European data law (EU GDPR) is impeding studies on diabetes and Alzheimer’s, researchers warn

For many people, the most apparent effect of the European privacy law called the General Data Protection Regulation (GDPR) has been a flourishing of website pop-ups, demanding your consent to store browsing behavior as cookies. An annoyance, perhaps, but hardly more than an inconvenience. For Francis Collins, director of the U.S. National Institutes of Health (NIH), however, the regulation has turned out to be a serious impediment to research.